Lorna's Journey Views

Monday, 5 February 2018

I'm so very tired....





I find day to day I can forget about my diagnosis a lot more now, it isn’t preying on my mind as much as in the initial few months. Despite this now being Chemo session 5 and a significant amount of the experience feeling routine at this stage. Every time we go to the hospital for another round of Chemo it is a really emotional process. It is a blatant reminder - ‘you have breast cancer’.  It would be lovely to erase the knowledge from my memory, unfortunately that’s not an option….

I attended the Chemo unit 3 days after my Dad’s party, I was well and energy levels were good. As was now the normal routine, I had my bloods taken the day before at my GP surgery and had commenced my steroids.

Craig and I initially met with the Oncologist she was happy with my blood tests and was interested in any side effects I had experienced with the Docetaxel drug.  I reported the ankle joint pains and the total exhaustion I had experienced. She acknowledged that these were common side effects with Docetaxel. She advised me to continue the use of pain relief as required for the joint pains. The fatigue she advised was something I would have to monitor and adjust my activity levels accordingly especially as regards work. She confirmed Chemo would go ahead and we were asked to return in an hour once Pharmacy had made up the drugs.

We went for our now obligatory visit to the canteen for coffee and people watching. Part of our routine.

Image result for people watching meme
When we returned I was allocated a chair in the chemo treatment room. A nurse I hadn’t met previously came to insert the cannulae…this went badly. She started poking and prodding my arm for veins, she attempted to insert the cannulae several times each time I watched as my arm became more bruised. I was rapidly losing confidence in her and I could see she was becoming more anxious which in turn made me feel uncomfortable. She eventually admitted defeat and asked if a nurse who I had met previously would take over. She tried several times but because of the now badly bruised arm she had less options to chose from. Fortunately she had success, and the cannulae was inserted. I was relieved but feeling very delicate at this stage.





The chemo ran through in approximately an hour with no further complications. We left the hospital and headed home for a quiet dinner and restful evening - well deserved and needed!
  
I slept very badly that night due to the steroids, I had to return to the hospital the next morning at 9am for a repeat CT scan with contrast. I was extremely tired, eyes hanging out of their sockets and looking like my arms had been mangled….The poor Radiographer looked horrified and I could see him panicking where he would be able to get IV access. I said just use the back of my hand, I knew it would be much sorer but otherwise it looked impossible. I was told afterwards that I would have the results in a few weeks.

My sleep over the next few nights was very disturbed (due to the steroids), I couldn’t get to sleep and was awake until around 4am each night. However, once I stopped the steroids (day 2 post chemo) the sleeplessness stopped and the ankle pain and exhaustion returned. Fab!
In addition the soles of my feet were also feeling numb, the best way to describe the feeling is as though you have sponges under the balls of your feet and are standing on them…weird I know. This along with joint pains wasn’t a pleasant experience.

I slept a lot for the next 3 days and then my energy levels began to improve. It feels almost as though you go into a form of automatic hibernation for a few days. Your body senses it needs to shut down in order to cope. Then like a very slow and sore tortise you gradually re emerge into civilisation!!!
Image result for tortoise from hibernation meme


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