Lorna's Journey Views

Wednesday, 6 December 2017

Sickness and Insomnia....




I attended my 3rd session of Chemo with my mum and dad. My husband Craig was unwell with a really nasty chest infection and was too unwell to accompany me. Due to my reduced immunity I was limiting the amount of time I spent in his company as I was at risk of picking up his chest infection. This was difficult for us both, but necessary.

I was assessed by the Oncologist at 9.30am. She reviewed how I had been over the past 3 weeks, asking about my general health and energy levels. She advised that I would be called to attend for a review ultrasound scan over the next few weeks, this would assess if the treatment was being effective.

The Chemo session went well though we had to wait from 10am until 1.30pm to start the treatment. The delays are frustrating at times, but at least I had company.  The treatment followed the same sequence as the first and second sessions. A series of six syringes delivered by a nurse over approximately an hour. This is the last session of the F.E.C drugs combination.

Image result for mind the gap fect chemo syringes
Once it was completed my parents drove me home. I took Cyclizine (anti-sickness drug) late afternoon to minimise the nausea. I’d taken the additional anti-sickness medications whilst in the hospital. I was feeling remarkably good and ate some soup my dad had made. I then went to bed early as I began to feel very tired, a side effect of the cyclizine is drowsiness.


At 10pm I began to feel sick, not just nauseated, I felt awful I leapt out of bed to run to the toilet to be sick….I didn’t make it.  I was sick everywhere, in the hallway, on the carpet, the walls, the bathroom door, the bathroom tiles. If nothing else I was thorough!!!
Image result for washing up basin
So whilst I clung to the toilet being sick, my poor unwell husband was mopping up the mess I had created.  The vomiting continued every hour throughout the night, Craig had the foresight to bring up a basin so I wouldn’t have to run the gauntlet every time.

Initially I tried to keep up my fluid intake but every sip of water caused me to be sick again. I began to avoid drinking anything in order to stop the vomiting and try to get some sleep. This didn’t really work, instead I started dry wretching as there wasn’t anything left in my stomach. I have honestly never experienced feeling as unwell as this (even looking back on all of my hangovers over the years!) I was physically exhausted, I was so tired, my abdominals ached, and I had no energy. Craig wasn’t much better, he was still unwell himself and had no sleep all night. He phoned the emergency Chemo advice line at 8.30am and advised them of my condition. The vomiting just wasn’t settling this time, I was at risk of becoming severely dehydrated. They advised him to put me into the car and bring me straight to hospital. 

He grabbed the emergency hospital bag and escorted me to the car. The basin stayed wedged on my lap for the 30 minute journey to the hospital.  I have minimal recollection of this journey other than focusing on trying not to be sick, unfortunately mind over matter was not so great as I was sick several times.

When we arrived at the Chemo unit I was directed into a side ward and allocated a bed. Several kidney dishes later, I was still being sick…The Nurses and the Doctor were absolutely AMAZING. Incredibly professional, prompt, empathetic, kind, thoughtful and funny.

Due to the dehydration my ‘difficult at the best of times veins’ were definitely in hiding, SIX  nurses later and no joy. Then…… to my rescue came a voice….. “Lorna what are you doing here?!” I looked up and was totally surprised to see a friend I had been at Girl Guides with when we were teenagers (unfortunately quite a long time a go!!). I hadn’t seen her since we were about 16 or 17. She asked could she try to find a vein, I said absolutely give it a go….first attempt and she found one. Thank you!!! The IV fluids were given via this. Then a syringe driver was set up sub-cutaneously straight into my tummy (running all the anti sickness medications I couldn’t keep down orally).  Almost instantly the vomiting stopped. Such a relief, I could actually sleep a bit. I did still felt quite nauseated for quite a while after the vomiting stopped.


I was managing to sip some water which was progress. However, I couldn’t contemplate solid food at this stage. About 1pm Craig brought me an ice lolly to try. It was possibly the best ice lolly ever…no exaggerating!!! If Carlsberg did ice lollies….. 

Image result for if carlsberg did ice lollies

I dozed on and off for most of the afternoon, a second bag of IV fluids was erected and the syringe driver continued to do its relieving work.

At 4pm the Doctor came to review me. She inquired if I had eaten any food, I said an ice lolly!! She suggested I try a cup of tea and a rich tea biscuit before they made the decision whether I could go home or if I would need to stay in hospital that night. She arrived back  having personally made me a pot of tea and with a plate of 3 biscuits. I was determined I was going home so I drank the tea and ate the biscuits. It took time but I was a woman on a mission.

 At 5.30pm with the IV fluids discontinued, Craig and I headed home. Both physically and mentally exhausted. The syringe driver came with me and was to run for up to 5 days. Arrangements had been made by the hospital staff for District Nursing to come the next morning to reset the driver with medication for the next 24hrs.

After 41 hours of no sleep we arrived home, had a little food and both collapsed into bed…. 

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