Lorna's Journey Views

Thursday, 16 August 2018

To Ring the Bell...or NOT!


I attended Radiotherapy sessions Monday to Friday for three weeks. After the first week the process seemed to settle into a routine, it was less unknown. Still very traumatic and I had a sense of I just wanting to get this done. I was very tired after each session. It was an overwhelming fatigue that meant I always slept for a few hours afterwards. Fatigue is a common side effect from radiotherapy both at the time and also in the longer term. This is what I struggled with at the time and continue to do so. 


Another common side effect is skin burns and damage. I was issued with Diprobase cream on my first attendance. I was encouraged by the Radiographers to apply this twice a day to the area being exposed to the radiation. This was to keep the skin moisturised and reduce the severity of the skin burns. I chose to be extra vigilant and apply the cream three times daily. Each time a tube of cream ran out I asked for a replacement from the staff. After the first week one of the Radiographers questioned why I was using so many tubes. I explained how I was using it. I think she thought I was stockpiling it to sell it on!  She suggested I didn’t need to use it as often (think I may have been costing too much money). I ignored this advice (bloody minded as ever) and continued my routine. After my treatments were complete my skin was in really good condition. (As mentioned in previous posts, I continued to take 2 eggs daily, extra chicken and fish to vastly increase my protein consumption as recommended by my Surgeon). The Radiographers were surprised at the lack of redness or skin breaks. All I can say is it’s all about the Dipro…….base!!! (no burning).

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During one of my final sessions I was being escorted from the waiting area into the clinical room. As I was walking through someone rang the bell. This hangs in the waiting area and once you complete your last session you can ‘ring the bell’. (Those waiting in the area give you a round of applause). For some reason this time the significance of this really hit me. It totally threw me off my guard. Maybe I had become so relaxed and blasé about being there, that I had let my protective guard down. 

I went into the clinical room trying to hold back my tears. As I lay on the couch, arms up round my head, boob(s) exposed I started to cry. Once in this position I was to remain perfectly still, I was unable to wipe away the tears and my vulnerability and the entire situation crashed onto me. I couldn’t stop the tears despite all my controlled breathing techniques! (squares). 

At the end of the session the student Radiographer came in and told me the session was complete and I could move. I hastily tried to wipe away the tears before she could see, but I looked a puffy faced mess. She was so kind and empathetic; she reassured me that it was ok to be upset. She showed me more humanity than any of the qualified staff had up to that point….. I told her I was just tired and rushed out of the room. I just wanted to get a hug from my husband Craig and go home. I went over to collect my chauffeur for the day (Craig). As we were leaving, the Radiographer who had been dealing with me that day asked if he could speak to me in private. He explained that he was aware I was upset (the student had informed him) and if I needed any support or advice there was a support service I could avail of. He was so kind and helpful, I was incredibly embarrassed to be honest, I was just so very tired and drained both physically and mentally that my coping skills had temporarily disappeared, all because of that damn bell.

On the day of my final radiotherapy session I chose not to ring the bell, I didn’t feel strong enough to do something so dramatic. I walked past it on my way out and said ‘bong’ quietly to myself and Craig…
I had finished……….

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